Wednesday November 23, 2011

It is not my day for posting on the blog. I have started three times and it just deleted itself so I will give it another try. I know that it has been awhile since anything was posted on the blog and I have heard from some many that read it, I will try to be a little more diligent in posting some information. Thanks for the friendly reminder from Liesel Johnson at the Pharmacy on Monday. It helps me know that people are so interested and concerned in Marilee and her family. Special thanks to Tim Young and the staff at the Pharmacy for helping in sending up prescriptions and everything else. We have also been very blessed by Kelli's great friend, Maren who is a pharmacist and has been helping out in every way from A to Z. Marilee has been given a prescription for a patch for nausea and they are on a national shortage. Kelli called the world last week and found three and is currently on the phone calling all of pharmacies in Utah. I am put my odds on her that she will find some. The nausea has continued to be a problem for Marilee. They have tried a number of pills and other treatments but nothing is working very well. Marilee had a port put in last week in an outpatient surgery to assist in the chemo treatments and she was throwing up so often and hard last week that blood came up through the port. She has quite the bruises from all of it. She has been getting some regular IV treatments to assist her with nutrition and the nausea. Oh, since I have been tryping Kelli has found one patch in North Ogden so we will be going to get it. Huntsman's pharmacy is working to trying to get some too.

Marilee went to Huntsman today and had a MRI. We are always nervous about these tests but Dr. Ward personally called a few minutes ago and said that his prelimary view of the results was OK and that if there was any change he would personally call. He is such a great Doctor and person and his staff is unbelievable. Kelli and the staff have all become very good friends.
Marilee has come home today from her visit and hit the sack. She is very deserving of a nap after a full day at the clinic. Kelli needs more than a nap but was able to rest for a bit. Marilee's white count level is too low for a chemo treatment on Friday and so we are hoping for a treatment on next Tuesday. They have also set up home health services to come into the house to take blood test, give IV treatments and other services. This will save her from having to travel to Huntman and the wear and tear of the trips. They have made one visit and the nurse was a hit with everyone.

Jenna went to see her Doctor today and he said her ear that he had operated on looked very good but her hearing tests weren't very good. She is scheduled for the other ear surgery on January 19, 2012. She made still need hearing aids after everything is done but she is such a brave young lady through all of this and we hope that we can get her so she can hear better. She also has a great doctor who is very concerned for her.

We should have everyone around for Thanksgiving tomorrow. Ryan got a job here in the Layton Mall and is working tonight.. Heid minus Josh will be here tomorrow with Alisa. Marilee's brothers are also going to be in the area and so she will be able to see them.

We are again so thankful to each of you for everything thar you do, say, pray for and think of us. It is overwhemling and I know that we cannot thank everyone. There have been some very special conversations and emails that will remain with us forever. Words are very comforting especially at the times that we need them and are an answer to our prayers for strength and help. The Lord has blessed us all more than we deserve. Thank you!